a rare disorder is catagorized as affecting less than 200,000 americans. i have tourrette syndrome, which is a rare disorder. anyone else have a rare disorder? especially tourrette! if u have tourrette you MUST post, iv been looking for someone else with the disorder!

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you can see it is often exagerated

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actually, that information is exactly right. And I get a lot of questions about it, so dont feel bad. I'd rather answer questions that have people start spreading rumors about me. first of all, I dont think seizures are a symptom of TS. that might be epilepsy. the swearing thing is a form of TS called corprolalia (cohr-pro-LAY-lee-yuh), which affects 10-15% of people w/ TS. There is no cure, but there are various treatments, including medication, therapy, and changes in your diet and environment. I use a combination of all three, but many people may refuse any or all of these treatment options, particularly medication and therapy, because its makes them feel that they are not in total control of their mind, or they feel that seeing a specialist or accepting treatment makes them officially "different". for me, though, its the opposite. after three years of medication and two and a half of therapy, i have more control over my self than I've had in years.

i guess his friend had a seizure once while he was driving and that was an "exciting" expirience.

Here is the info i found on my favorite med site on it. you can see it is often exagerated

"Tourette syndrome (TS) is an inherited disease of the nervous system, first described more than a century ago by the pioneering French neurologist, Dr. George Gilles de la Tourette. Before age 18, patients with TS develop motor tics, that is, repeated, jerky, stereotyped, purposeless muscle movements in almost any part of the body. Vocal tics occur in the form of loud grunting or "barking" noises or, in some cases, words or phrases. In most cases, the tics come and go, and they often are replaced by different types of sounds or movements, which may become more complex as the patient grows older."

if you want more info (it's quite detailed) http://www.chclibrary.org/micromed/00068510.html

if you want to learn more about any disorder http://www.chclibrary.org/ is a great place... actually if you want to learn about any syptom or medical technique it is a good source... i always use it for reports.

i think aplastic anemia is a trajic yet very interesting rare disorder. it has info on that. i did a report in my physilogy class on it. the site even has stuff on mental conditions like my favorite, schizophrenia (it's very interesting and misunderstood).

Do you?

I always wonder, because I don't know anyone with it, but how is it compared to the movies? Like do you just yell random stuff like swears or is it stuff no one can understand like mumbling? Not trying to be mean at all, I just want to be less ignorant of the disease.

As for me...I have a genetic disorder called Crohn's Disease.

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Theories about what causes Crohn's disease abound, but none has been proven. The most popular theory is that the body's immune system reacts to a virus or a bacterium by causing ongoing inflammation in the intestine. People with Crohn's disease tend to have abnormalities of the immune system, but doctors do not know whether these abnormalities are a cause or result of the disease.

The most common symptoms of Crohn's disease are abdominal pain, often in the lower right area. Bleeding, weight loss, and fever may also occur. Bleeding may be serious and persistent, leading to anemia. Blood tests may be done to check for anemia, which could indicate bleeding in the intestines. Blood tests may also uncover a high white blood cell count, which is a sign of inflammation somewhere in the body.

Sometimes, it may be difficult to imagine living a “normal” life when you have to cope with the discomfort and pain Crohn's can cause. But you are not alone. Thousands of Americans live with Crohn's disease and lead full, enjoyable lives.

To get the most out of life, you need to help manage your symptoms and care by eating a good diet, dealing with stress and other emotions, and developing a strong relationship with your doctor and healthcare team.

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Before I knew what I had, I was in alot of pain, very severe pain(I was even bed ridden for 4 or 5 months). Now I try to eat right and take medication when needed...and I get along pretty good. Honestly I'm not botherd by it too much anymore...or maybe I just got used to it. Sometimes I have some pain and fevers...but nothing major.

what treatment is there for tourrette syndrome?